|Hi there. Thanks for coming to visit me.
I'd like to tell you a little about myself, and to show you my picture
of the cutest bunny.
I'm thirteen years old, and I have NF. It's
real name is neurofibromatosis. Nf causes spots and tumors (lumps). It
also causes learning disabilities and speech problems. I just have those,
but it can cause all kinds of other problems too, like deafness and blindness.
They call what I have NF1. People with NF2 are the ones who usually go
deaf or blind. NF makes things hard for me. It's harder for me to write
than it is for you. It's harder for me to learn things too.
I like to roller blade, ride my bike, swim, dance and play basket ball. I have a very hard time learning these things. My brain can't tell my arms and legs what to do properly. I can see what other kids do, but I can't do it. I try and can almost get to do these things, but it's always hard for me. It is NOT hard for me to play with my puppy, though! What do you think of him? If you pat him on the head, you can watch him grow up. Right before your eyes!
I have met some great people on the KIDS
NF page. We write to each other a lot. Share our feelings. It's nice to
talk to other kids who understand. I hope that you'll understand now, too,
because I'd like to be your friend.
Want to read my poem? Just pat the wolf
To the frog ponds Learn more about NF To the site map
Joan Fleitas, Ed.D., R.N.
Associate Professor of Nursing, Lehman College, CUNY
Bronx, New York 10468
Last updated: November 14, 2004