 Introduction...For
Adults Come learn what these pages are all
about.
They have expanded over the past few years to respond to your requests.
Parental permissionI'd
like your permission for children to share their stories, pictures and
e-mail addresses on my site. Hope that you'll think it's a good idea.
Band-Aides
and Blackboards? The words are metaphors
for my
take on serious illnesses and disabilities in childhood. This essay
explains
why I chose them.
A
search for silver
linings A collection of poignant and funny
stories
about children with medical problems.
What's
important to you? What have you learned
along
the way that would be helpful for others. Share it here.
About sibling
relationships A father shares some wisdom
about
siblings and the influence of serious illness on them.
Through
the eyes
of a sibling A mother shares how her son
viewed
the illness of his brother, and reminds that we need to pay attention
to
the world through the eyes of children.
Hospital
orientation Parents have asked for such an
orientation.
Contains many pages with a focus on honesty, parenting, anger, guilt,
sadness,
fear, and the people you'll meet.
Adults
remember when Stories
from adults who grew up with serious medical problems. Important
perspectives.
ImageryThis
is the first of three pages of imagery I did for children having tough
times. Use the fantasies to help your kids relax and cope with stress.
Advice
from a parent Debbie
writes about raising a daughter with disabilities
About
assumptions Shanon
writes about the danger of making assumptions when children present
with
hidden disabilities like Chronic Fatigue Syndroms
Finding Nemo,
finding a hero Lisa writes about
some ah-ha experiences she had as she was watching
"Finding
Nemo" and thinking about the challenges of parenting
children
with chronic illnesses (she has two with cystic fibrosis). Her article
refers to the value of a "love and logic" approach with children.
A good read!
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Intro..."Sally
Goes To School" The
introduction
to a story I wrote that incorporates much data from children.
The
lowdown on teasing Some excellent links to
other
web pages. Come back to visit my pages on teasing (sitemap) when you
finish
visiting theirs.
Experts
share their tips Children have a clear
sense of
what works for them and what makes them crazy. They share their
perceptions
on this collection of pages.
Classroom
activities Annotated links for teachers to
related
web resources and to a "sampler" collection of pages from Band-Aides.
Tips
on coping A
dad shares strategies for coping with the reactions of others to
his multi-handicapped youngster.
More
advice from a parent Lynn's hints for
parenting
children with serious medical conditions.
The
need to fly Reflections from a mother about
a
child's need for independence, regardless of medical status.
About
inclusion A wonderful letter from a teacher
about
her experience with having an older child with CP in her classroom of
5-6
yr olds.
Resources
for teachers about
children with medical challenges
The
stars are shining! This is a page of awards
that
the site has received. I accept them on behalf of all of the child and
teen experts who so generously shared their stories.
Thanks
for your letters A
number of pages of letters received about Band-Aides. Hope you'll let
me
know what you think.
Onward to the children's
pages. Come on...go on over for a visit.
You'll
find their stories absolutely wonderful!
The
power of belief A Child Life Specialist
shares
her experience working with a child in a coma, and calls on us all to
be active
in communicating with those experiencing decreased levels of
consciousness
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