About Moebius

by Joan Fleitas

There’s a giggle in my belly
There’s a smile in my soul
In my dreams I can talk clearly
And my nerves I can control.

But in real life there’s a problem.
You can’t see beneath my skin.
So you look just on the surface
and you notice I can’t grin.

My face can’t make a smile
and it’s hard to close my eyes.
I was born with Moebius Syndrome.
What a name for a disguise.

‘Cause I am not this syndrome
I’m a me that’s much like you
Though I may look slightly different
and I may at times seem blue.

Some people think that laughter
must show right on your face,
but if you lived with Moebius,
you’d know that's not the case.

So teach your heart to listen.
It will hear what you can’t see.
We will have the greatest friendship
if you stick around with me.

Want to read the Spanish version?

Joan Fleitas, Ed.D., R.N.
 Associate Professor of Nursing, Lehman College, CUNY
   Bronx, New York 10468

Last updated: September 14, 2005

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