When she was about three days old, she was still losing weight, so they put a naso-gastric tube in, again telling me that nothing was wrong and that I needed to calm down...to continue the sedatives.  I wanted answers, and though I guess that was asking for an awful lot, I was in a state of panic. 

When Robyn was seven days old, I took her home. They told me to let her sleep for twenty minutes and then to try to feed her for another twenty. By that time, I had given up on breast feeding. In fact, I had just about given up on everything! It wasn't until she was four years old that the physicians told me she had a cleft palate. They apologized for not noticing sooner. If only they had listened!

On the  way to Robyn's three week checkup,  I crashed the car. You can imagine the state I was in! She was in a carry tot and the accident, though it didn't really hurt either of us, scared her enough to produce hysterical cries. 

That did the trick, because the doctor noticed that her face wasn't appropriately responding to the crying. He diagnosed Moebius syndrome on the basis of what he saw as facial paralysis. He congratulated himself on the diagnosis. And I felt relieved that my fears were not "all in my head" after all. 

Medical people have GOT to listen to the people they care for. Thanks for taking the time to read what was for me a true horror story. Here's a picture of Robyn today...a real blessing in our lives!   Teresa Kirk