On my first
I was diagnosed with Multiple
The only time I have a problem in school is in gym and walking up and down the stairs. We have a lot of stairs in my school. I never wanted to tell anybody what I have, but this year I was having so many problems doing gym and even sitting on the floor, that I had to tell my teachers. My doctor, who is really nice, gave me a letter and form for the school nurse, explaining what I had and telling them that I knew what I was able to do and they should listen to me when I said I couldn’t do something. Once my teachers knew they were really great, and they would give me a chair to sit on during assemblies when all the kids had to sit on the floor.
The only friend who knew I had this was Ally, my best friend since we were 2 years old. I didn’t want to tell other kids because I was afraid they’d make fun of me or not want to be my friend. It made me feel brave and lucky when I read some of the other kids' stories on Band-Aides, though, and it made me start to tell kids at school that I have tumors on my legs that make it hard for me to sit on the floor. Recently I’ve told six more of my friends and no one made fun of me. One even said I was lucky because I got to sit in a chair at assemblies!
Next month I am going to have my first operation. I’m going to have staples put in the growth plate in my left leg because my leg is crooked and this will straighten it. They are also going to remove a big tumor on my leg. I’m sort of scared, but I’m going to get a lot of attention and ice cream – my favorite!
Next year I’m going to Middle School and that should be fun. They don’t have so many stairs there (I only saw three). I might be in the adaptive gym class because gym is going to be very, very, very, very hard! They also have great ice cream there!
Thanks for visiting, Nicole
Associate Professor of Nursing, Lehman College, CUNY
Bronx, New York 10468
Last updated: November 30, 2006