Hello!
My name is Kristina...(I'm the one with the paint on her face)...and I
live in Germany. My sister is older than I am, and of course, my mom and
dad are, too! I also have a cat named Jazzy, and that is my family. I am
8-years-old.
I have
something called Moebius Syndrome, which means that I am not able to smile
and I can't close my eyes. I don't like when people ask me why I can't
do that stuff about ten times. Just when one person finishes their questions,
another one starts.
I have
two best friends at this conference. It's a conference that brings people
together from all around the world to meet other people with Moebius and
to learn more about all the treatments and operations that can help. You've
already seen my friends' pictures! Robyn is from South Africa (she's the
girl in the middle), and Elizabeth is from Minnesota (and of course you
must have figured out that she's the one with the blue shirt).
About
two years ago, when I was six, the doctors figured out that I have a mild
case of Moebius. And that is the rest of the story of me. I hope that you
liked it!
Joan
Fleitas, Ed.D., R.N.
Associate
Professor of Nursing, Lehman College, CUNY
Bronx, New York 10468
Last
updated: November 14, 2004
