Thanks for taking the time to
visit and to
read my story. My name is Jonathan and I was ten-years-old when I told this story in 2003. If you
met me, I bet you'd tell your friends that I am a humorous person, as
as a reasonable and serious one. I'm athletic, too, and a good student.
I know you'd call me a good friend if you got to know me.
The best parts of my life are my
friends. I share my most precious moments with them. I have a
sister named Kristen, and it's fun having her around. We have some
times together, as well as some pretty sad and disappointing ones. When
I think about how important my parents are to me, I just can't
teenagers with bad attitudes. It seems like they are just interested in
being 'cool' and powerful, and disrespectful.
Being me and staying healthy take
up a lot
of my time. That's because I have a medical problem called cystic
I have to take good care of myself, which involves taking a lot of
and doing treatments to keep my lungs clear like yours. In fact, my day
revolves around taking all the medicines. It's a difficult job, so I
to joke about it as much as I can to make it a little easier. I try to
eat good meals and to listen to my doctors, too, since they're the ones
who figure out what medicines I need to take, and they're the ones who
try to keep me out of the hospital. I guess you could call me a
expert, since I've been in at least twenty times. If you need to go in
to the hospital and you're worried about it, just ask an old pro like
to help you understand it all.
My friends often question me
fibrosis. I try to answer their questions in a way they can easily
The way I see it, I'm pretty much like them except that my day is a bit
more complicated. I enjoy baseball, basketball and golf.
If I were the principal of my
school, I would
try to make it a safe place to be, and a fun one, too...a place where
can ask for whatever help they need.
Here I am in the hospital with my
I'm about to go home, so believe me, my smile is sincere. My dad calls
me his role model, but I'd say the same thing about him! Now in this
picture, look real hard and you can see the machine that keeps my lungs
clear. Kids who have cystic fibrosis tend to have very thick mucus, so
it's important for them to use machines like this one. I have a special
sort of vest at home that vibrates when I wear it. It is definitely not
much fun for me, but I have to admit that it usually does the job it's
Fleitas, Ed.D., R.N.
Professor of Nursing, Lehman College, CUNY
Bronx, New York 10468
updated: November 14, 2004