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My name is Bobby, and I'm 9-years-old.  I have one 11-year-old brother, Danny, who just started middle school.  I like him because he is funny and makes me laugh.  I have a 4-year-old sister, Alyssa, too, and though she can be fun, she is sometimes a little crazy. 

I love to play on my computer, especially NBA LIVE and TRIPLE PLAY 99 and Backyard Baseball.  I collect Pokemon cards and Starting Line-ups miniature sports figures. I have a cat named Cody, too, and I hope we get another one so that Cody can have a cat friend.

My doctors told me I that I had Multiple Hereditary Exostoses (MHE) when I was 3-years-old after my mom found a bump behind my knee. Of course I was too  little to know what they were talking about, though I understand this problem now. Since I was little I have had one operation to remove 3 bumps on my wrist.  I was 5-years-old and in kindergarten, and I needed to have a cast on my arm for 3 weeks. After that I went to physical therapy.  I go once a week to help me keep the strength that I have in the upper part of my body, and to help me build those muscles up even more.  I have a special therapist who is a lot of fun. We do wheel barrow races, push ups, arm bike, velcro board and my favorite thing - throwing a weighted ball onto to an almost upright mini tramp - Itís like a pitchback and itís fun!

In total I have had 2 operations, though I don't remember the first since I was just a little baby, only 7-months-old. Altogether I have had 106 stitches, including 6 stitches that I got when I fell off a hammock! Was I ever glad when the doctors finished sewing me up!

I've been having some trouble lately because of this bone problem I have. For instance, it's hard for me to write, and I cannot sit cross-legged on the floor, and I cannot straighten my left arm. The problem with that is football. Just try to do a 4 point stance with your elbow bent. See what I mean, it just doesn't work! 

To continue, I cannot hold onto monkey bars, or do gymnastics, and lately my knee hurts me when I run, even for a short distance.  But I like to play baseball, football and basketball, so it's tough to stay on the sidelines.  My Dad coaches my brother and me in baseball and football. This past spring, our baseball team, THE HAWKS, made it to the championship game!!! I just started pre-clinic football and I love it! 

One thing that bothers me about my bumpy bones is that nobody I know has them.  But now my mom told me about other kids and grownups who have MHE, so I can write or talk to them.  I donít like to be different.  I get embarrassed about my difference, so it really helped me to read some of the stories of kids with the same thing, and I feel better knowing that other people have MHE.  Now if only they lived close to me. I'd really like that.

Sometimes my friends ask me about my scars on my arms from my surgery.  I just  tell them that I had a bump on my bone removed.  I usually don't tell people about my bumps, unless they ask, of course. Then I tell them.  So far, no one has teased me about my bones. That's good, isn't it?    Well, that's all for now. Thanks for visiting my page.


 
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Joan Fleitas, Ed.D., R.N.
Associate Professor of Nursing, Lehman College, CUNY
Bronx, New York 10468
 

Last updated: November 14, 2004